Exciting news comes from the CCCA for the quality of life for childhood cancer survivors! The excerpt below comes directly from the CCCA's recent news feed, click here to read more.
CCCA Supports Introduction of Childhood Cancer Survivorship Legislation
On September 22, 2011, Senators Jack Reed (D-RI) and Kay Bailey Hutchison (R-TX) and Representatives Jackie Speier (D-CA) and Michael McCaul (R-TX) introduced bipartisan legislation to improve the care and quality of life of childhood cancer survivors. The Pediatric, Adolescent and Young Adult Cancer Survivorship Research and Quality of Life Act of 2011 marks a critical step forward in the delivery of medical and psychosocial care to survivors of childhood cancer.
Friday, October 28, 2011
Saturday, October 22, 2011
Free podcast!
Highlighting: Solving Kids’ Cancer – FREE podcast!
We would like to introduce you to the This Week in Pediatric Oncology podcast (thanks to the ped-onc-surv for the hat tip!)
Solving Kids' Cancer is a website that hosts podcasts and so far 17 episodes have been published:
1. 4/11/2011 Epidemiology of Childhood Cancer (landmark paper)
2. 4/13/2011 Interview with Greg Reaman (outgoing chair of COG)
3. 4/25/2011 Vincristine Pharmacogenetics, Irinotecan/Temozolomide for Relapsed Neuroblastoma
4. 5/8/2011 Meetings Recap and Immunotherapy for Synovial Cell Sarcoma
5. 5/19/2011 Hedgehog Signaling and Itraconazole
6. 5/26/2011 Interview with Dr Archie Bleyer (was head of Children's Cancer Group for 10 years)
7. 6/2/2011 Interview with E. Anders Kolb and Andrew Napper on drug development
8. 7/9/2011 Seneca Valley virus and medulloblastoma
9.7/16/11 Interview with Dr Peter Adamson
10. 7/7/2011 Interview with Dr Robert Seeger
11.7/12/2011 BuMel SIOP results and MIBG transplant with Dr Brian Weiss
12. 8/5/2011 ALL: Anti-CD19 BiTE and Genetic Risk Groups
13.8/19/2011 Updates, epidemiology of CNS tumors, birth order, and cell phone risks
14.8/24/2011 Interview with Dr. Kate Matthay
15.9/28/2011 MicroRNAs and hereditary cancer
16.10/7/2011 Genetic Underpinnings of Ewing Sarcomas: Interview with Dr. Stephen L. Lessnick
17.10/13/2011 Personalized medicine: Interview with Giselle Sholler
You can subscribe by email, RSS or iTunes on the SKC site (see the right side of their webpage)!
We would like to introduce you to the This Week in Pediatric Oncology podcast (thanks to the ped-onc-surv for the hat tip!)
Solving Kids' Cancer is a website that hosts podcasts and so far 17 episodes have been published:
1. 4/11/2011 Epidemiology of Childhood Cancer (landmark paper)
2. 4/13/2011 Interview with Greg Reaman (outgoing chair of COG)
3. 4/25/2011 Vincristine Pharmacogenetics, Irinotecan/Temozolomide for Relapsed Neuroblastoma
4. 5/8/2011 Meetings Recap and Immunotherapy for Synovial Cell Sarcoma
5. 5/19/2011 Hedgehog Signaling and Itraconazole
6. 5/26/2011 Interview with Dr Archie Bleyer (was head of Children's Cancer Group for 10 years)
7. 6/2/2011 Interview with E. Anders Kolb and Andrew Napper on drug development
8. 7/9/2011 Seneca Valley virus and medulloblastoma
9.7/16/11 Interview with Dr Peter Adamson
10. 7/7/2011 Interview with Dr Robert Seeger
11.7/12/2011 BuMel SIOP results and MIBG transplant with Dr Brian Weiss
12. 8/5/2011 ALL: Anti-CD19 BiTE and Genetic Risk Groups
13.8/19/2011 Updates, epidemiology of CNS tumors, birth order, and cell phone risks
14.8/24/2011 Interview with Dr. Kate Matthay
15.9/28/2011 MicroRNAs and hereditary cancer
16.10/7/2011 Genetic Underpinnings of Ewing Sarcomas: Interview with Dr. Stephen L. Lessnick
17.10/13/2011 Personalized medicine: Interview with Giselle Sholler
You can subscribe by email, RSS or iTunes on the SKC site (see the right side of their webpage)!
Monday, October 17, 2011
The FDA and rare disease research
Last month we read about a move by the FDA to increase its rare disease efforts. The impact on pediatric sarcoma research remains to be seen, but we are hopeful!
FDA to Revamp Rare Disease Efforts
The US government agency vows to improve the way it facilitates the development and approval of drugs for orphan diseases.
By Bob Grant | September 12, 2011
FDA to Revamp Rare Disease Efforts
The US government agency vows to improve the way it facilitates the development and approval of drugs for orphan diseases.
By Bob Grant | September 12, 2011
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